Fundraising
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The KAT6 Foundation relies on community fundraising to advance research, create trusted resources, and support families around the world. Every dollar raised brings us closer to better treatments, stronger connections, and brighter futures for individuals with KAT6A and KAT6B.
Ways To Fundraise
Participate in the Annual KATwalk
Held each September, the KATwalk is our largest community fundraising and awareness event. Families, friends, and supporters around the world come together to honor loved ones, raise awareness, and fund research that brings us closer to better treatments and brighter futures.
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Year-End Giving – Annual Appeal
Support our Annual Appeal during the year-end season. Your tax-deductible gift helps sustain research initiatives, educational programs, and family support efforts into the new year. Your generosity—whether through a one-time or monthly donation, a gift of stock, or an estate bequest—directly fuels progress for families worldwide.
$6 for KAT6 – Rare Disease Day
Each February, in honor of Rare Disease Day, we host our $6 for KAT6 social media challenge. It is a simple and meaningful way to raise awareness and invite friends, family, and colleagues to contribute to our mission.
“I Care for Rare” Campaign
Our ongoing "I Care for Rare" campaign allows parents and supporters to create a personalized fundraising page connected to any activity. Whether you organize a hike, run, golf outing, bowl-a-thon, birthday fundraiser, or another creative event, your page can link directly to the KAT6 Foundation and amplify your impact.
Corporate Gift Matching
Many employers offer corporate matching gift programs that can double or even triple your donation to the KAT6 Foundation. Some companies also extend matching benefits to employees’ spouses and retirees.
Check with your human resources department to see if your employer participates in a matching gift program. By completing a simple matching gift form, you may be able to significantly increase the impact of your contribution at no additional cost to you.
Our IRS information for your employer:
The KAT6A Foundation, Inc.
8 Leland Court, Chevy Chase, MD 20815
Email: support@kat6.org
EIN #82-3118535
8 Leland Court, Chevy Chase, MD 20815
Email: support@kat6.org
EIN #82-3118535
Sponsor An Event
We welcome corporate and community sponsors for our events and initiatives.
Sponsorships provide valuable visibility for your organization while directly supporting research and family resources. Please reach out to learn more about current sponsorship opportunities.
Learn About SponsorshipPurchase The First-Ever Book About KAT6 Syndrome!
KAT6 and Me by Kristin Ross O’Brien and Dr. Lindsey Murphy
Meet Bash—a joyful, curious, and brave boy who happens to have KAT6B syndrome.
KAT6 and Me is a heartwarming, inclusive children’s book that introduces young readers to a rare genetic condition through the eyes of a child. With bright illustrations and an empowering message, Bash takes readers on a journey through his world—complete with leg braces, an AAC device, a feeding tube, and a big imagination. This book celebrates differences, encourages empathy, and reminds us that every child has their own way of communicating, learning, and being amazing. Whether you’re a parent, educator, therapist, or advocate, KAT6 and Me is a valuable tool for starting meaningful conversations about disabilities, acceptance, and belonging.
Perfect for ages 4–10 and ideal for classrooms, libraries, and families who believe in the power of inclusion. All proceeds support the KAT6 Foundation.
Order NowKAT6 and Me is a heartwarming, inclusive children’s book that introduces young readers to a rare genetic condition through the eyes of a child. With bright illustrations and an empowering message, Bash takes readers on a journey through his world—complete with leg braces, an AAC device, a feeding tube, and a big imagination. This book celebrates differences, encourages empathy, and reminds us that every child has their own way of communicating, learning, and being amazing. Whether you’re a parent, educator, therapist, or advocate, KAT6 and Me is a valuable tool for starting meaningful conversations about disabilities, acceptance, and belonging.
Perfect for ages 4–10 and ideal for classrooms, libraries, and families who believe in the power of inclusion. All proceeds support the KAT6 Foundation.